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Syringomyelia- a disease we should all be aware of

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Syringomyelia- a disease we should all be aware of

Post  Cathy on 1/27/2011, 2:18 pm

I apoligize in advance, this is going to be a long post.

Before June 2009, I had never heard the word "syringomyelia". Nor had I ever heard the words "cadual occipital malformation syndrome" or COMS. Yet in June of 2009, my world was rocked by just those words. Winston had those diseases as well as hydrocephalus. These are neurological diseases and the only way to properly diagnose them is an MRI. The syringomyelia or SM affects mostly Cavalier King Charles spaniels. I belong to a Calalier forum for information and support since no one else seems to have a Pug with SM or COMS. I asked the poster of the following for permission to cross post this in the hopes of raising awareness of these horrible diseases to *all small skulled breeds, and Pugs are included in those. The post that follows spoke to me since it's just about the same story with Winston, although, he's still here, but not doing well.

Guest Post by Nicki from Rupert's Fund

Teddy's Story:
Teddy came to live with us in April 2005 at 19 months of age - he had been living in an outside kennel and was not house trained, but he quickly learnt about living life indoors He was a gentle, soft boy, and a wonderful companion for Rupert - they were very close.
I soon realised that something was not right - but even my vet could not believe that we would be so unlucky as to have TWO affected dogs (little did we know...).
Teddy was scratching, to start with on one side only, not making contact with the skin – and just behind his front leg. It soon became bilateral, and eventually both ears too. He was not happy being groomed – and was generally such an easy dog, happy to do anything you wanted him to do, so I knew it was not naughtiness. He was treated for parasites, skin irritation and put on exclusion diets for food allergies, none of which made any difference.
Teddy was MRI'd a year later - and we were shocked to discover that he was indeed moderate to severely affected. When we obtained Teddy, we had impressed upon his breeder that we desperately wanted a healthy Cavalier – obviously we had recently been through Rupert's bad pain episode and feared he would not be with us for long; we also had another little Cavalier who sadly had many health problems, and was euthanised at the age of 7, not too long after we had Teddy. We were looking for a healthy Cavalier who would be with us for many years...
After Teddy's diagnosis, we wrote to his breeder explaining what had happened, and asking if she would be prepared to offer us some help with the huge vet bills we were now facing. She wrote back wishing him well and sent us a refund of his purchase price.
Teddy started a program of treatment, having medication every 8 hours. We were lucky in that every time he deteriorated, we found or were told about a new treatment or supplement which helped him. It was an emotional rollercoaster, but when you love them so very much, you do everything you can to help.
Teddy's symptoms
Scratching – initially one side, later both. Behind the front legs and later both ears too. If you touched his chest, that would trigger a scratching episode. It was hard for him to stop scratching, even if you called his name or touched him.

Pain – he NEVER yelped or cried out. Pain was apparent though in his facial expression and demeanour. Eventually he started to vocalise - moaning and groaning noises.
Intolerance of grooming. Particularly hated having his nails trimmed and eventually had to be sedated for this and for clipping his coat.

Sought cool areas to lie, he could not cope with heat/warm rooms.
He was very restless – at his worst times, he could not stay in the same position for more than about 30 minutes and would wander around trying to get comfortable.
Excessive tearing from eyes
Haunted look in his eyes, and ears held lower and back.
His balance was initially very good, but eventually he started limping and his reflexes were affected, and he then started to stumble occasionally.
Mild urinary incontinence

Teddy dropped a lot of coat, his gorgeous bushy tail disappeared and his belly and groin area were actually bald. This was believed to be a side effect of the Gabapentin. He was clipped under sedation at the vets in January 2010 – and his coat never grew again, an unsolved mystery.
Teddy had a follow up MRI 2 years after the first one as his symptoms were getting worse. There was some progression but not as much as we had possibly expected, which gave us some hope. However symptoms do not always correlate to the degree of severity apparent on an MRI – the width of the syrinx is more significant than the length, also whether it is asymmetrical.
Teddy was on an extensive schedule of medication, for over four years - we tried everything we could to keep him comfortable and happy. He also had natural supplements and homoeopathy. Teddy had regular blood tests to monitor the effect of the medications on his body – he had to take a liver support medication, as his liver was affected, possibly due to the drugs.
He developed some urinary incontinence but this was treated homoeopathically with complete success!
Sadly Teddy also battled with Small Intestinal Bacterial Overgrowth so he had to have daily antibiotics; he also developed a heart murmur at the age of 4, which progressed with frightening speed and in just under 2 years became a grade 5/6.
Teddy started vocalising showing that his pain was not under control, he was limping intermittently {neurological rather than injury}. He was very restless. It became apparent that life was no longer enjoyable and Teddy did not even want to go for walks anymore. We could no longer keep him comfortable, so he was given his rest peacefully at home on 8th April 2010 at only 6 years of age :-(
We gave the gift of love and put Teddy through the Syringomyelia Cavalier Collection Scheme – a difficult decision to make but it is a huge comfort to us now – it gave value and meaning to his passing and hopefully the tissues harvested from his body will help this very important research.

Teddy loved to be involved in whatever we were doing. He was very close to my husband but he always wanted to be wherever I was - he was my soulmate.

Dealing with chronic conditions such as Syringomyelia is very draining, it's hard to take pleasure in and enjoy your dog when you feel like you are living on borrowed time. Every day you would worry about new symptoms you might be seeing, you tend to blame everything on the Syringomyelia but also have to investigate other possibilities.
Not only is is very draining emotionally, your whole life revovles around the dogs, making sure you or someone responsible is around to dispense their medication. Teddy was on an 8 hour schedule for over 4 years, so we could NEVER have an early night or a lie in. We never resented it, we adore all our dogs and would do anything for them.
It is also draining financailly, even with insurance we were paying out hundreds of pounds a year, not only on veterinary fees, but also travel costs to the practice and to specialists, supplements and complementary therapies. A considerable amount of time is spent nursing the dogs, also researching the condition and treatments and working with vets. It is tragic that this wonderful breed has to suffer from so many horrible problems, it affects so many lives.

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Re: Syringomyelia- a disease we should all be aware of

Post  Aussie Witch on 1/27/2011, 2:24 pm

Thank you for sharing this with us Cathy. My heart breaks for you and Winston and I wish you guys didn't have to go through it. You know you will get love and support here. hug dog
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Re: Syringomyelia- a disease we should all be aware of

Post  Saira on 1/27/2011, 2:24 pm

I had never heard of that. Thank you for sharing the information, it sounds just awful. I'm sorry that Winston is afflicted with it.

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Re: Syringomyelia- a disease we should all be aware of

Post  Snifter&Toddy on 1/27/2011, 3:41 pm

I knew the condition is rife in Cavaliers but I had no idea it could affect pugs.

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Re: Syringomyelia- a disease we should all be aware of

Post  Not Afraid on 1/27/2011, 5:20 pm

The BBC produced a program about inbreeding of Pedigree dogs in England and talked about this disease (focusing on CCCs). You can see the entire doc HERE.
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Re: Syringomyelia- a disease we should all be aware of

Post  HK Pugs on 1/30/2011, 11:59 am

Cathy, thank you for sharing this information with us. My heart breaks for
you and Winston as you go through this. Crying or Very sad

Owned by Bugs, Smokey Joe, Miss B, Sydney, Humphrey, Lucy Lu (the nose) and Bella Cat
Bailey, Percy, Dodo Bird, Carmen, Billy, Frankie, Bear and Prince (cat) are forever in our hearts

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Re: Syringomyelia- a disease we should all be aware of

Post  Abbie&Lola on 9/8/2012, 5:34 pm

so sorry to hear this, my angel Lola has Syringomyelia , its not too bad yet but i can tell its coming :(

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